Hunched over the garden, pulling weeds I heard a loud shriek.
“Uh-Oh,” I thought as I stood up.
I pushed my ear out towards the neighbor’s house and listened.
“THAT’S IT! I AM GOING TO KILL YOU WITH A STICK!” I heard Declan screech from three houses away.
In high gear I ran to the neighbor’s backyard. I saw Catelyn trying to talk to Declan while the neighborhood kids stood and stared.
I could tell right away they had been playing a game.
I could tell right away Declan lost.
I could tell right away some kids were annoyed with Declan.
“Declan,” I called from the other side of the yard, “It’s okay.”
“NO, IT’S NOT YOU STUPID IDIOT! GO AWAY! I AM GOING TO KILL THEM WITH A STICK!” Declan yelled looking wildly around a thankfully barren back yard.
“Declan,” I said as I neared with my hand signing “stop.” I imitated three big breaths.
“GO AWAY YOU GREAT BIG DUMMY!”
“Declan,” I heard Catelyn soothe, “Let’s go home and get some ice cream. Don’t you want some ice cream? With rainbow sprinkles and whipped cream? Let’s go home and get some ice cream.”
“I am NOT GOING HOME!”
For twenty minutes we moved two inches forward, two inches back. Calm words were overpowered by insults, cries and threats until a calmer Declan was able to take steps in one direction. And eventually found himself at our kitchen table, sniffling through a large bowl of ice cream with rainbow sprinkles and whipped cream.
Applying Learned Social Skills
Once, while I was watching one of the kid’s soccer games, I heard Declan start to scream at kids he had found on the sideline to play with. I offered to take Declan away from them when a girl replied, “That’s okay. We are older than him and we should adjust our game to play to his age.”
Kids like that ‘wow’ me.
Unfortunately, in our neighborhood we have a couple of kids that aren’t there yet.
When Declan gets upset and throws insults, they throw the insults right back. They challenge his beliefs. They see Declan become enraged and they push mean words harder.
They are aware Declan is autistic. But they don’t seem to understand what that means. They don’t “get” Declan.
Playing games, specifically LOSING at games, is something Declan continues to work on at school with his social skills teacher. It’s written in his IEP. In his IEP he also works on social skills, peer conflict, expressing emotion, playing by the rules, sharing, respect, etc. – through play, role play, worksheets.
In the controlled school environment Declan does well. With his 1/1 aid, his supports, his teacher he is taught useful skills in communication and play. When Declan takes a step off course, he is coached back to successful interactions.
Maybe it is the presence of supportive staff, or just a bunch of ‘wow’ kids, but Declan’s peers are respectful of Declan as well. He is shining right now at school.
Here’s my Catch-22. Declan is doing well with his social skills goals in his IEP in THAT environment. APPLYING what he has been learning to his home social environment is sometimes a challenge.
I wish I could keep Declan around ‘wow’ kids all the time. I wish he could have supports follow him wherever he goes. I wish Declan had hours of fun playtime outside with peers.
At school, Declan is learning skills and succeeding in a supportive controlled environment.
There is a lot of social learning that occurs outside of school too. It IS useful as the world is full of “button pushers.” Helping Declan apply that learning in his home social environment continues to be a major focus for us.
It’s hard to know when to jump in and rescue vs letting them try and possibly fail.
We try to let Ben work it out on his own at first, hiding and watching for safety. Sometimes he can get himself back under control and sometimes it’s just too late, too much.
Unfortunately the “button pushers” get joy pushing those buttons, and the world is FULL of them. Thank goodness for the “wow” kids and thank the parents. It gives us hope.
I’m glad that The Boss is kind when her employee is having a bad day😉
💌
I know! Sometimes I get stuck trying to figure out the best way to help and someone else jumps in and I am so thankful. This time it was The Boss 😉 She hit the nail on the head and helped him to think about something more enjoyable and got us all home safely. And I had let him out to play really hopeful for him. He wants to play and have friends – and I want that for him too! It is hard – don’t want to smother – I’d like to try and give him a bit more freedom, but I don’t want to see him get hurt either. Tough balance!
I had an interesting time with our grandson this weekend. When he got tired he had a bit of a hissy fit about getting undressed. He did not want help and I just had to wait it out for him to decide he would get undressed and get into his pajamas. There were periods of silence, then more squawking then finally a decision to undress and put on those pj’s. He is not autistic he was just a very tired 4 year old. But even that little patience testing waiting game makes me realize how patient you are Robyn. Once again my hat is off to you!
Oh, that does sound frustrating. Patience really is a virtue – and it was something I didn’t even know I had. Thank you so much, Anne!
I read the autobiography of the Iron Maiden singer who is a qualified large passenger plane pilot. It’s called ‘what does this button do’. That would be the perfect title for our parenting book. Even though we don’t have all/most/any of the answers you and your family push the right parenting button most times. I’m sure you will find a way to give D more freedom and when needed you will find a way to smooth life’s challenges. Really sorry not sure what I’m waffling on about. D is doing great and the bumps will hopefully in the long run help the transition into the wider world later on.
Oh, that would be a good title to our book. I am lost here. The school is always shocked when I tell them of his social struggles at home. Declan shows no signs of such extreme struggles there. He wants more freedom – and he does REALLY well just going for walks around the street on his own. He also does well with a couple of the kids near us – they are just easy going and understanding. But every now and again things go so very south and I see the family trying to counsel the right social response and hopefully some of the wonderful things he learns with his social skills teacher translating from school to home. One day! Fingers crossed!
This sounds so much like Tyson. At school he does have all the supports he needs; a controlled-very structured environment, but at home and in the world, it is more challenging to say the least. Hugs to you guys!
Yes! School is so shocked when they hear about this side of Declan because they never see it – he just has people with him everywhere supporting him. Thank you, Carlene! Hugs to you guys too!
You are most welcome. For Tyson, I’ve realized he holds it all together pretty well; has sensory breaks throughout the day and home is where he can be his loud; sometimes obnoxious self. That’s his safe place. His 1:1 therapy in ABA has helped. Meltdowns used to last 4+ hours a day each time they happened. We’ve learned a few techniques that work 85% of the time and now meltdowns are down to 30 min or less. He started behavioral therapy 8 months ago.
I love Declan ❤️ I have to admit to smiling at your words “ I’m going to kill you with a stick” heard from three hoses away, 😉he definitely has got good lungs 😏 I suppose he is just like every other child getting frustrated but his emotions must be intensified by 1000.
Yeah – I am happy to say he doesn’t really hit anymore when he gets really mad, he just throws out the meanest things he can think of to say. So, that is definitely good! And he’s so big now I have no chance in carrying him home. Just takes a lot of coaxing and calming 🙂
I’m sure you are extremely good at talking him down 🌹
I think you are an amazing parent! Patient doesn’t begin to describe you. I think “ love” is a better word. Yours for Declan shines through. I know autism “ intensifies by 1000” but I think his response to losing is very typical of any child. He just expresses it! And with you around, he WILL get there…..to a more “socially accepted” level. Many hugs….to both of you. 😀
Thank you so much!! 🙂
Hi, Robyn. I am thinking about starting a blog about my own son on the spectrum to help with communicating with dispersed family and friends, previous outstanding care-givers,etc. I have started looking into Word Press. Do you use the WordPress free version, or something else? I am interested in setting up a right-hand sidebar as you have, with the search, trending, and etc. gadgets.
Thank you!
Hello! I wish I was smart like you and asked someone else first. I went to bluehost as my hosting site and wish I didn’t. I wish I had WordPress has my host. I wouldn’t do their free site, I would pay for a personal site. I am afraid to change at this point – I don’t know if I would lose all my content, but I think I would be starting from scratch and have to regain my followers so I have stayed with bluehost for the past 3 years. Another downfall using a separate hosting site is that no one can reblog one of my posts, nor I theirs. It’s frustrating. I chose the Matata theme for my design. It is free – I liked the sidebar too, although I wish the entire page was filled with my last posts and not just the 10 or 12 that are shown. The downfall with this theme is that I cannot create pages. I have tried twice and ended up deleting my entire blog – and then I have to go to bluehost to have them fix it instead of going to WordPress. Maybe you will have better luck with pages if you just stay with WordPress. Well, I think that is it! Good luck to you and if you have any other questions, just let me know! As a side note, I really love the autism community here on WordPress. We are all very supportive of one another – it is great! Good luck!
Same boat. The worksheets are easy; real life is harder.
Yes! So then when I go to the school and ask they work on this – well, he’s met those goals there so they don’t need to and recommend I get services at home. And if I got him in therapy here, he will still do great in a session – he just needs to apply what he’s learned. Tough!
I agree!