āWhen I talked with Catelyn about different social situations, she responded correctly every time.ā
āWell, she was just in an intensive social skills support group this summer.Ā She probably learned a lot from there.ā
āMaybe.Ā For the purposes of this evaluation for services though, I can only look at the present.Ā I cannot look at the past.ā
āThat doesnāt really make sense either.Ā Just because she has learned how to handle a situation, doesnāt mean it still isnāt something that comes easy to her.Ā What if she is having a bad day?ā
āIām sorry.Ā That just isnāt how this works.Ā We do feel she is depressed.Ā I think keeping her in therapy at this time would be beneficial for her.ā
I was talking to the guidance counselor at Catelynās school.Ā Once Catelyn was diagnosed with High Functioning Autism (HFA) and in therapy, I alerted the school.Ā They proactively decided to meet with Catelyn to see if she would benefit from extra support.
Their outcome?Ā Catelyn was depressed but did not require extra school support.
Catelyn has always had to forge ahead on her own without support.Ā She has two big things working against her.
1.Ā Ā Ā Ā Ā Ā She is very high functioning
2.Ā Ā Ā Ā Ā She is a girl
Why would being a girl work against Catelyn?
When people look at Catelyn, they want to see restricted interests, difficulty in social situations ā just the way they see them in boys with autism of the same age.Ā Things autism diagnostic tools tell one to look for.
You know, all those autism diagnostic tools that were created by evaluating boys.
In this article, āRighting the Gender Imbalance in Autism Studiesā the author looks at how girls are being overlooked.Ā Not just by society, but also by science.Ā Right now, autism is four times as common in boys than girls.Ā Why?
One reason, most of the studies completed have very few females in them.Ā However, when they add autistic girls, we learn girls exhibit different traits than autistic boys and are not being identified.Ā The author even likens these differences in diagnostic criteria to heart disease.Ā Women with heart disease were being overlooked for years as their symptoms look different then menās.
So, what are some of the differences?Ā Some may include autistic girls tend to be more socially awkward than their neurotypical (NT) peers but are interested in social interactions.Ā Autistic girls may have learned to camouflage their traits to meet societal expectations.Ā Autistic girls may make eye contact and have restricted interests, but it looks different.
In this article āWhat are the Signs of Autism in Girls ā Is Aspergerās in Girls Overlookedā I read boys with ASD may collect information on a topic of interest to them (like vacuum cleaners) while girls tend to align their interests with their NT peers, just in a more focused way.Ā Like learning all there is to know about American Girl Dolls, for example.
Also, that girls work hard to keep it together at school, but then come home to have meltdowns.
We can relate to that as well, as I wrote in After School Restraint Collapse.
One of the biggest challenges cited in both articles is that women and girls tend to accumulate misdiagnoses or other diagnoses like depression and anxiety.
(Ding! Ā Ding! Ā Ding!Ā That resonates for Catelyn!)
Why is it so important to identify girls with autism and not overlook them?
So they can get the support they need too.
When I see articles on this subject, I get very pleased.Ā Information is getting out there and we are getting closer to a point that girls like Catelyn will be identified and supported.Ā Not forced to assimilate and left feeling bad about themselves and confused ā left to become anxious or depressed.
Great post
Thank you!
Very interesting post, Robyn. It’s the same over here – girls are often overlooked. One excuse of the authorities is that girls ‘hide it better’. But there are bound to be differences, as there are in neurotypical males and females, there will be in autistic people too. It’s good that these articles are shedding more light on the matter and hopefully things will even out as a result. Thanks for sharing.
Yes, I am so happy to find information on the subject so there can be a result where girls are identified and supported. Thank you!
Sadly this is so true. I remember being told by a doctor that the process of getting a diagnosis would be ridiculously difficult but at least he wasnāt a girl as that would be even harder. Girls like Catelyn deserve so much more from society and the system. Letās hope for change and change now.
I agree – I like to see these articles because it means there is attention on the subject and hopefully change on the horizon.
I’m so glad you’re speaking on this!
Thank you! For Autism Awareness Day I wanted to post on the subject I wanted the most awareness for – and this one came right to mind.
Perfectly expressed!
Thank you!
She has an amazing advocate in you!
Thank you so much!
Lots of awareness being raised this April over here too, and about time.
Great post!
Thank you!
I do think girls are better at dealing with their autism… or at least giving that appearance. I had never met a woman with Asperger’s Syndrome until I got to my current job… but I’ve encountered several boys/men with it…
Me neither – When I took Cate in I thought she would be diagnosed with Oppositional Defiant Disorder, Depression and Sensory issues and would work in therapy on her lack of social skills. Autism did make better sense when it was explained to me – I was just used to my experience with autistic males that I didn’t realize what autism looked like in a girl.
Your posts are of so much information a s courage. Your boy is so lucky to have you around him. All the best to you and the little champ.
Thank you so much!
This makes a lot of sense!
I agree – I am so glad attention is being brought to this subject!
I didn’t even know! -but I’ve suspected this. I have all boys, but your article and others I have seen help me see how girls struggle as well.
I didn’t either – then a couple years ago I ran across an informational bit and my jaw dropped. Really eye opening for girls on the spectrum (and maybe why the numbers of 4 to 1 are so skewed).
Oh, I think so!