“What is Declan and Catelyn’s relationship like?” The principal of the school asked, “I wonder if we could use time with Catelyn as a motivator?”
“Definitely! Declan protects Catelyn. To Declan, Catelyn can do no wrong. But Catelyn does do wrong and so I try to discipline her. I will be sending her to her room and he is standing between us yelling at me to “Leave her alone!” And I am only trying to send her to her room!”
“Oh wow, that’s something!”
“Yes,” I continued, “Catelyn protects him to, more reasonably. There was an incident a couple of weeks ago. Declan was misunderstood by some boys so they started kicking soccer balls at him. Declan of course got frustrated and started throwing punches. The boys started punching back. It was Catelyn that saw the incident, stopped the boys from hitting Declan, and sent another girl to get an adult. She helps him a lot too. He even thanked her for her help on the car ride home. It was cute.”
“That is great. Such a sweet sister. So, we can add time with Catelyn as a reward for Declan next year if we need to. I also want to make sure we try to block Declan’s learning time and playground time around the hours his aid will be here. That way he has the learning support in the classroom and social support on the playground/lunchroom if he needs it.”
As I said before, Declan is covered. I have little concerns when it comes to Declan and his support for next year.
And remember when I said that the words no one wants to hear in that stuffy IEP meeting room are “does not qualify for services?”
Catelyn does not qualify for services. She was evaluated by the school at one point after working in therapy. The school felt she was doing okay academically and did not need extra support. If I ever tried to fight their decision, I would have my work cut out for me for sure.
But do I feel she really need services?
A couple of years ago, Catelyn signed up for the wrong lunch. She has numerous sensory issues around food and the taco salad she accidentally signed up for was not going to work out. She tried to explain to the lunch lady her error, but she was not allowed to change. Catelyn was crying at this point and so a teacher got involved. Catelyn said she would eat an apple and drink juice. The teacher said this was insufficient and to eat the salad, which Catelyn refused. Catelyn was then led out of the cafeteria by the teacher in front of the entire lunch room, taken to the office and I was called.
I brought her a lunch right away and spent a good ten minutes trying to put her back together. She was overwhelmed with emotion, so I am sure when she was trying to communicate with the teacher and lunch lady it came out fuddled. When she was ready she went back to the lunch room again to eat while the rest of her grade was out at recess, which she was going to miss.
I doubt anyone would do that to Declan.
But Catelyn does not qualify for services.
My guess is that there are very few people at the school that even know Catelyn has High Functioning Autism. She doesn’t wear a sign that says, “sensory issues,” “social problems,” “problems with flexible thinking,” or “trying hard to regulate my emotions.”
The support that goes with services – the understanding – is lost on Cate in the big picture. She must face her challenges quietly. And even though she carries the same diagnosis as Declan, she does not get support.
This year she had a wonderful teacher who was willing to work with Catelyn and support her needs. He put Cate around wonderful accepting friends and she had a great year.
I am hopeful the trend continues. That she can be supported for her needs and continues to succeed in years to come!
Sounds very trying indeed. My Sammy has what little iep we can get by my pushing month after month and they still feel she is fine academically despite scores showing a 4th grader at 1st grade level
How frustrating! I wish it was easier to get kids the support they need!
My autistic daughter is eligible for monthly ssi payments however her mother and myself are married, and because I make too much money (even with only the one income)…
those monthly payments have gone ***poof***
You can say, we save the gummint a barrel of money by being hitched.
Oh, and my daughter… yeah, she is still autistic, nothing has changed there.
~Baahd Wolf
Those rules are really frustrating – especially since the benefits are for the care of your daughter. Not right.
Teachers make or break the year for us. Getting an empathetic teacher who is willing to try new tactics really makes a difference.
I agree completely. This has been Catelyn’s best year yet and I swear it is because she has a caring and supportive teacher!
It’s great that Cate is doing so well overall. It’s a Catch 22, isn’t it?! You want her to have as much help as possible but to qualify for extra help she needs to be struggling. I think she’ll be okay next year. It sounds like this school is really committed to student success, from the principal down. Talking with her teacher was so helpful this year, I’m sure that the teacher next year will be willing to help too.
If not, Declan will make sure his sister has support 👍😄
It is, you’re right. This has been her best year yet – she had a great teacher and she really didn’t need any extra services. The teacher made the accommodations for her on his own. I plan to talk to the teacher next year as well – you’re right. I think that really helped things.
Hahaha! Yes, he would! 🙂
You are such a MOM!
🙂
I can so relate to this post! I know a boy who was doing too well academically, even though he had obvious (to me) disabilities, and didn’t qualify for services. So he spent middle school being told he didn’t have any problems and he just wasn’t working hard enough. I took that boy aside (I had permission from the mom) and validated his struggles. I gave him a few coping skills, but my heart just broke whenever his disability got him in trouble. Later in high school, he was tested again and sure enough what I had suspected all along was true. Now he has the support he needs, but what about all those others who never get it? My heart hurts for them.
Wow, that is something! I am so happy you picked up on his struggles and provided him support when the school deemed him “fine.” And then to be tested again, and he had what you thought! That is something! Way to go! High 5 to you!