Fevers and Autism

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“How does it feel now, Declan?  Does your ear hurt now?”

Declan looked thoughtfully at the Doctor and turned his head on an angle.

“Yes.”

“Does it hurt when I wiggle your earlobe?”

Declan thought for a moment and replied, “No.  It hurts when you press down on it.”

“Oh yes,” the Doctor said as she peeked into Declan’s ear with her scope, “this ear is infected.  I will prescribe you some medicine to make it feel better.”

“Declan, this is the pink medicine which is a little different than the one you like.  But you still need to take it to make your ear better,” I added.

Declan turned his head to look at me, “Okay.  I will take the medicine, Mom.”

I smiled and nodded.  Good old, Sick Declan.

How did we get to the Doctor’s office?

It all started five days ago.

After putting a pink cheeked Declan to bed one night I carefully asked when he awoke the next day, “How are you feeling, Bud?”

Declan swallowed, held his throat and responded, “Yes, I am still feeling quite ill.’

He’s still feeling “quite ill.”  O-kay.  Sick Declan is here.

For the next few days we went through the ups and downs of sickness – Sleep, rest, Tylenol, fluids.  One Emergency Room visit for difficulty breathing led to three rounds of respiratory steroids and a diagnosis of Croup.

And just when we thought we were through the rough patch, Declan woke a few days later with pain in his ear.

It is during these times of sickness the most remarkable thing happens.

Sick Declan leads to calm, clear headed Declan.  The Declan who looks at and talks to strangers.  The Declan who doesn’t bounce around the house.  The one who can communicate his feelings more clearly.

Years back I started looking around Google for some answers – did fevers affect autism behaviors?

Well, lo and behold, just like sleep is a common issue for those on the autism spectrum, fevers can affect some autistic behaviors.

The Fever Effect

In the article here, I read of a study that was published stating: When autistic kids get a fever….They can become less withdrawn, more alert, more talkative, more communicative. [The] hospital staff members working with autistic children “noted [the] marked behavioral [improvements].” But, as soon as the fever stopped, they went back to their baseline.

In another article of a study concerning fevers and autism found here, I read: parents reported that fever improves their children’s ability to learn, communicate and interact with others. It also lessens the children’s repetitive behaviors and tantrums.

This is pretty amazing findings!  What is happening with fevers that is causing those with autism to become more alert and communicative?

No one really knows yet, but it is being studied.  In this article here, I read: Possible explanations include changes to the action of cells in the brain’s hypothalamus or to the release of glutamine or taurine.  Another theory involves “heat-shock” proteins people produce during fever to protect cells from damage.

Not every parent reported these findings when their autistic child had a fever.  Just like sleep – fevers affecting autism behavior appears to be a common issue, but not true for everyone.

These positive findings though are directing researchers to determine if there are treatments or new ways to help.

Declan is on the mend and I am saying goodbye to Sick Declan.  Which is a good thing.  I am happy to see him back bouncing on his trampoline and pain free.

I am sure I will see Sick Declan again one day and will continue to marvel at the subtle differences in his communication and behavior!

40 thoughts on “Fevers and Autism

  1. Firstly – poor Declan, that sounds a nasty sickness. I hope he’s all better now. 🙂 I’ve heard of this phenomena of symptoms improving with a fever and the child becoming more alert and responsive, and it’s very interesting. Nathan got a dose of flu earlier this year and was very sick indeed, but we’re one of those who didn’t see any of these changes, so I guess it doesn’t apply to everyone. Still, hopefully something positive can come out of the research, so it’ll be interesting to see where this goes. Thanks for sharing Robyn, and I hope Declan stays clear of any more nasty bugs. 🙂

    1. Thank you so much for the well wishes, Alli! Thankfully he is on the mend now and feeling much better. It is such a weird phenomena. I forget about it until Declan has a fever and then my husband and I laugh at the change. So strange! This time around I realized it would be a fun topic to talk about. Hope all is well with you and your family! 🙂

      1. Thanks Robyn, I’m glad Declan is on the mend. It is, indeed, a great topic to talk about, and it’ll be interesting to see if the research leads anywhere. We’re all ok, except I’m all wound up because my exam is on Friday. Still, afterwards I’ll finally get to relax and plan the Welsh trip. Roll on Friday afternoon, when it’ll all be over! 🙂

        1. Oh, wow! Good luck to you on your exam. I am sure you will do great! I am excited for it be over so you can relax!

          1. Thanks Robyn, that’s very kind. Here’s to the weekend and all of us feeling better! 😊

    1. I agree! The change is always something my husband and I laugh at (in that we are saying to each other, “Oh my gosh, did you hear what he just said?!”) but I have never talked about. Thought it would make a neat topic to bring here!

        1. The fever seems to, I agree. And it is not just the lethargy that comes from being sick. You are right – there is a higher of clarity in his thinking or communicating. So bizarre!

  2. Hope Declan is better soon. Our son tends to get ear infections when he is ill. They are not nice. It’s an interesting one. Lots of research strands. But I suspect we are a million miles away from unraveling all the myriad of factors. Always hope for a better understanding but then..The key is what our kids want. Son sees his autism in terms of his personality, who he is. He doesn’t want to change. He wants to cure his dyslexia but not his personality,

    1. I completely agree. I wouldn’t change a thing about Declan. I think he is happy being Declan too. But I wonder if Declan were more severely affected – was unable to communicate or into self-injurious behaviors -head banging or punching himself repeatedly. I would want to help him feel better – some relief. I’m not there though, so it is hard to say. Just an interesting phenomena.

  3. It is such a worry to have a child ill. I can remember my son getting ear infections and crying and crying. So I’m glad Declan is back to healthy Declan. However I find this fever and different behavior in autistic children very interesting. I hope that more research will be done that could provide some clues as to exactly why this is .

    1. I agree – it is such an interesting topic and I am glad they are looking into how fever affects autistic community. Thank you! Yes, he is definitely on the mend, which is such a relief as a parent.

  4. Wow! I’ve never heard of this. It sucks that he’s sick, but how funny that he’s ‘easier to manage'(I hate to phrase it that way) instead of super grumpy like everyone else when they’re sick. Ben’s pain threshold is so ridiculously high that we never knew he had ear infections until his eardrum burst and started leaking fluid😱😷 and it still didn’t seem to bother him. We had a standing prescription for medicated ear drops for a while. He’s allergic to penacyllin and any antibiotics make him rashy & sick. Luckily he doesn’t get sick often. His regular temperature runs a little high anyway 99.3…
    So many things we don’t know or understand…
    Hope he’s done being quite ill😄

    1. I agree – such a strange phenomena! He’s doing better, but now I am feeling “quite ill” 🙂 Going through the house I guess!

      1. Oh noooooo😱😷 That’s the worst. Just when the kiddos are back to full energy, Mom gets sick🙁 and do they help out and chill out until she’s better??? Nope!
        Sending virtual hugs and chicken soup💌💌

        1. I do have to give some kudos to the littles – just before all heck broke loose 😉 I did get them all set up with different activities so I could rest for a few. And then the two littles brought me microwaved popcorn they made to help me feel better 🙂

  5. I never thought that a fever could make a child with autism more responsive. That’s really a great find. Happy that Declan is feeling better. It’s always hard to see your child sick.

  6. Very interesting post! My son is on the spectrum and having fever does make him calmer and his self stimulatory behaviours (flapping and humming) go away until he feels better!
    When he was a toddler for a while he used to make this terrible high pitched screaming noise and I remember feeling like a terrible parent once when he was I’ll as I was enjoying the calmness and silence!
    Ana

    1. I can completely relate. Not that I wanted him to get sick when he was younger and much harder to manage – but I always appreciated the calm!

  7. Wow…physiologically this just blew me away.

    To say I enjoyed this is an understatement.

    Something I’ve never come across before and something I will be very much researching over the weekend.

    Will be the topic of many a conversation in my clinic over the next week as it exemplifies just how intriguing our nervous system is.

    What I enjoyed most was that you actually lived it off experience…rather than just stumbling across a trillion and one conflicting studies out there.

    You identified this phenomenon yourself from being his mother first…from loving…looking after…and caring for him.

    Shows the way your brain works and how much attention you pay to your children.

    Your due diligence is second to none…as…I don’t think many people would have been able to pick up on that…or at least have tried linking the two together.

    Hope all is well and again…thank you for a fantastic topic for me to try and get my head round ✌️❤️

    1. Thank you so much Lee!! I really appreciate your kind words. Hope all is well with you!! 🙂

  8. What an interesting phenomenon and another one to add to the books. My son with some autistic tendencies has the sleeping issues, but only in getting to sleep. As far as fevers go, you’re right about the calmer and more focused behavior. We often think of it as his Professor stage.

      1. From what you’ve written and today’s experience, you’ve inspired me to write about going to the dentist. Don’t know when it will post, but you’ve helped me realize that things are not always straightforward with more special needs kids.

        1. That is great! I can’t wait to read about it. Every family is different and things are not just black and white. I really think sharing our story helps – us and others!

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