When I started my blog way back in 2016, my goal was to share some helpful tips and to educate others about autism. Since I cannot speak from anyone else’s perspective, I spoke specifically as a parent to children on the autism spectrum.
By no means was I ever a pro parent, let alone a pro parent to a child with autism. Like everyone else, I was figuring a lot of stuff out as I went. In 2016 when I started my blog, Declan was about to turn 5 years old – and by that time – I had figured a few things out that I thought might be worth sharing.
At that point, I had received a lot of positive feedback from friends that said I could make a subject like echolalia easier for everyone to understand. Friends recommended starting a blog with this useful information.
So, I did.
In 2016 Declan was still in his special education preschool. We decided to hold him back a year instead of starting kindergarten. He was not yet potty trained. He still resolved most problems with aggression. Declan was a darter/eloper. He did not sleep more than a few hours a night. He had a limited vocabulary and only ate a handful of foods. Declan did not see other people, only his objective.
And all castles made of blocks or sand were meant to be destroyed.
In 2016 we were finding new ways to accomplish the things we used to do as a family. We were slowly pulling away from “We can’t do that” and using different strategies to have successful outings.
Even vacations.
It was when we were on vacation in 2016 that I wrote the post “Autism, Vacationing, and Elopement.”
I thought it would be cringy to read that post, as some of my earlier posts do leave me with an “Eww” feeling. But when I checked this one out last week, I nodded my head. Yeah, not bad.
Writing aside, I was interested to see where we were five years ago. And ALL the tricks we used to keep him safe. Wow. What a different time.
I read on and remembered the post “Why and How We Make Autism Visible.” Again, I didn’t cringe. Again, I remembered the past when a store employee and I would be chasing Declan from the tops of arcades only to get a stern look once he was retrieved.
This all came to the forefront of my mind after our last vacation. Declan earned the title of “Vacation MVP.” Unlike the other two, he didn’t talk back. There was no attitude. Declan was filled with compliance and positivity.
Not only that, I didn’t have to chase him around a beach. I didn’t have to apologize to kids and their families for Declan destroying a castle they had worked hours creating. We could spend more than 20 minutes on the beach before heading home. I didn’t have to closet all of the decorations the rented shore house possessed to keep them safe. I didn’t have to monitor all social encounters or apologize for thrown sand or punches. Declan maneuvered through his own gained social circles. Like a pro.
I happily walked down streets with Declan singing at the top of his lungs with a smile on my face. I spent my evenings on the beach or the boardwalk with Big D proudly donning and talking to (and for) Cranky Pete. I happily packed his trampoline so he could stim in the garage.
I still write an autism blog, although a lot of posts these days tend to steer to other subjects and are not always about tips for parenting autistic children or educational pieces on autism. Autism is just a part of our story and will continue to pop in its head.
In some ways, Declan has found himself and happily talks about his special autism trait. Catelyn can see herself in a different light and new understanding. I have grown up a lot myself. What was new, confusing, and challenging for me before I can see has evolved into something else – a completely cool way of life.
I gave tips on things that helped our family many years ago. I may only have one tip left:
Do what works best for you and your family.
And enjoy the ride!
I’m so glad Declan is doing much better! My son is 10 and still struggles with safety and understanding. Sadly we can’t take him on vacations anymore. It’s stressful having to chase him when he elopes and we don’t get to enjoy vacations as much. I hope we see some improvement so we can start doing vacations together. It’s hard juggling it all and making sure my other 2 sons can also enjoy activities my 10 year can’t do.
Thank you! Eloping was Declan’s thing – at school and at home. It was so scary! He wasn’t doing it to be difficult; he was just focused on something and darted or left. We used the AngleSense tracker for years. We used to (and sometimes still do) just do things separately. Even today we are planning to go to the pool, but again in two cars. The big kids will go with my husband and meet their friends, and I will go separately with Declan to do his thing and leave when he is ready. This year bringing the big kids’ friends on vacation was a huge help. They got to have their vacation, and D got to have his. I think it was easier for Bob and I to adapt to his needs while the big kids had their own fun time. I am hopeful you guys can start to have vacations together too!
Those are great ideas! Thanks Robyn! I hope so too 🤞
You do and did not only your best – you do and did it the right way. 🙂
Thank you so much!! 🙂
Life seems to be getting easier for you now that they are growing up, hopefully you will get more you time soon x
Thank you, Elaine! Some things are definitely getting easier. Some things are just different – me included! x
I can imagine, if anyone had told you how your life would have turned out eh, but you’ve been brilliantly ❤️
Thank you, Elaine!!
I just came across this blog! I am glad that Declan is doing well! I am on the autistic spectrum and I also write some blogs on autism, which I am sure you can relate to somewhat. Thanks for sharing!
Feel free to read some of my blogs 🙂
Thank you! Will do! 🙂
I enjoyed reading this post on this late sunny Sunday afternoon with a big smile on my face. It is so wonderful that you are able to trace your footprints back 5 years and see all the amazing gains you and Declan have made. Congrats, kudos and enjoy the moment. And thanks for helping spread a light for others to follow too!
Thank you so much!!
Five years? Things sure have changed for Declan and for Ben. We would’ve never dared hope it would get easier… or at least change.
Ben will be 13 (😲) in September and there are new changes.
We still worry about keeping Ben safe, but we don’t have to hide all the knives anymore😉
Yes, there have been, and continue to be challenges, but there is lots of fun too!
How many puppets did D promise to others while on vacation?😂
Oh my gosh, us too! I brought the knives back in from the garage. What cracks me up is that I find other things that I removed from the house too! I found my jewelry boxes, corn cob holders – even the meat thermometer and whisk. I never know what is going to turn up next. But I do know that I needed to hide them then. What’s interesting to me is how we just kind of adapted without those things. Even in the kitchen all cleaning supplies went to the cupboard above the kitchen sink as childproof locks were a bust. I can’t move the windex or clorox back to below the sink – not if I ever want to find them on the first try! 🙂
Haha! So, I started a puzzle so the big kids would have something to do if they stopped by to watch TV or to eat a snack as it was in the middle of the kitchen/family room area. I found that when they did stop they also got to watch a puppet making video and get schooled on puppets in general – because if Declan was at the house that is where he sat in front of the TV airing another puppet YouTube video. The big kids friends left with a tan and a new found knowledge on all that is puppetry! 🙂
I can’t believe Ben is going to be 13! Wow! My gosh, the kids are growing up!
Sounds like there have been so many positive changes in the last five years. I’m glad Declan, and all the other kids, had a great vacation this year. I can’t even imagine what a struggle it must have been in the past.
Thank you!
Well deserved progress on both your parts. I thought this post was going to introduce a new topic to include in your blog. Still waiting for that.
Thank you! I doubt I will dedicate the blog to a whole new topic but excusing my future self for possibly steering posts in a different direction. We’ll see!
I think this post defines, in real terms, grit and resilience. Well done.
Thank you!
A great post, Robyn, and I’m so glad you started out on this blogging path as you’ve brough so much to fellow parents of autistic kids. Even though all those on the autistic spectrum are different, I’ve always enjoyed your posts and found them engaging, helpful and thought-provoking, so here’s to many more as your children continue to find their way in the world. It is a different ride when autism is on board, but you’re absolutely right when you say it’s just a part of our lives. It’s also what makes our families special and unique, and – dare I say it – interesting! 🙂
Thank you, Alli!! 🙂
So much family progress made. D and C have made such progress. You and the family have done a fantastic job. I’ve learnt so much from your posts. They have really helped us 😊
Thank you! 🙂
At age 17 Isobelle still doesn’t know when she needs to go to the toilet, to eat, to sleep etc.
Way to go awesome mum!
You sound like a pro to me 😀 thank you for sharing, it’s wonderful to read posts about how things DO get better, and easier too! You must be so proud 👏🏾👏🏾
Thank you!
❤️❤️❤️
One of my favorite of your posts, ever! Love, love, love this! It touches a nerve in me somehow.
First, isn’t it cool to see where we were, how we were doing, and remembering back to what it felt like then. Second, “Vacation MVP”!! Love the phrase. Third, singing at the top of his lungs and walking proudly beside him down the street is such a profound example love, acceptance and understanding for your child, and even maturity as a parent, maturity many people never achieve at any point in their lifetime. Fourth, Declan being able to negotiate the social interactions in such a positive way is testament to you and your husband’s diligence, patience and perseverance! Bravo! And lastly, you said you find yourself writing less about autism now as the kids grow….isn’t that a positive statement about the parenting work y’all have done?!! You’re a long distance runner, Robyn, and that has helped you in long distance parenting! You will still hit a parenting “wall” now and then, but you keep pushing through one step at a time….y’all have run so far!!!
This is the nicest comment ever!! Thank you so much, Jeff!!
It must be a great feeling to read about your lives then and compare that time to this. It’s wonderful that you were able to vacation as a family.
Thank you! I realized this past vacation is one we thought we would never have again and really appreciated how far we’ve come. Such a great journey! (And relaxing vacation!).