“I guess the biggest thing I can say is, hang in there. Some things get easier.”
During one of my husband’s guy outings a few years ago, he had discovered one of his new friends had a child in high school, on the autism spectrum. They sat and talked about the struggles and the joys of their children.
After a few of their outings, the husband wanted to meet me with his wife. To reach out and provide support. It was an awesome gesture.
At this point in our autism journey I was frustrated in hearing how others seemed to know how I was feeling. That I, somehow, was a mirror image of others who traveled a similar path. When others spoke of their journeys I would smile and nod. But in my head, I was checking off how many differences there were in our stories.
The couple came to our house, and as we talked, I realized that I wasn’t seeing a ton of differences. I was seeing similarities.
We talked about it all that night – the lack of sleep, the confusion, the search for services, the meltdowns, autism-proofing the house for safety, windows always locked for safety, alarms on doors.
And one that we talked about for a while – the husband added, “I can’t believe how many of our “friends” just dropped us. You know what? Screw them.”
We talked for hours. It was so nice to connect. And as they left the wife said to me again, “Things do get easier. Just trust in that.” And she followed with, “I know you said you had to take all the curtains down and that he has put holes in all your furniture. My son did too. But guess what? We just went furniture shopping yesterday. Brand new NICE furniture is going to be delivered to our house this week. And I can’t wait. Just trust that some things change. Some things get easier.”
Some Things Get Easier
I’ve thought about that a lot recently. It’s true. Some things have gotten easier.
Declan and Catelyn are not the same children they were 2, 3, 4, 5 years ago. They’ve been supported. They’ve learned so much about the world and themselves. They’ve matured some.
I am not the same person I ever was. I have also matured. I was given a new perspective having children with different needs. And I know where my focus needs to be.
I’ve learned how to support my kids and each of their unique needs.
My expectations have changed. Not in my kids – I still expect each of them to try their best within their capabilities. But in day-to-day things. I don’t expect the same things I used to, or took for granted. I don’t expect the same thing I see of my peers. I don’t expect to go out on date nights. I don’t expect both my husband and I will be able to attend a function or party we have been invited to, sans kids. Only one of us goes. I don’t expect to take the family to some exotic destination for summer vacation. I don’t expect to take my kids to the movies, to a restaurant or a store and be able to complete the event without having to leave early.
And to quote a line from a favorite Paul Simon song of mine, “I don’t expect to sleep through the night” as a little person in this house is unable to.
We have found a way to make things work. We have found a way to support one another. The outcome has been less family stress. More family happiness. Some things are easier.
This morning Declan returned to his favorite couch to jump and listen to his favorite songs. He does this every morning.
As I watched him I thought of the conversation we had that night. The wife was right. Some things do get easier.
And if that is true, then maybe the other will be true as well.
In 10 years Declan will be the same age as her son on the spectrum. And I will be buying brand new furniture! 🙂
https://www.youtube.com/watch?v=orsd3oK8ALs
Things do get easier! You have learned how to respond to your kids.
That’s true! Parenting doesn’t come with a manual and each child requires a different kind of parenting. They definitely taught me that!
I have a friend who gets it and those are rare. Thank you for the reminder of looking back and know it can and will get easier
They are rare and oh so special! Deeclan’s daily jumping made me think of the furniture, but then the whole story – we really are in a different place than where we started! I needed the reminder too 🙂
💗
It’s hard to hold on to that hope when we’re exhausted and life is chaos. It *does* get better. And sometimes difficult again…then better again. We forget that we parents need support too.💪💌💌
It can definitely be hard, I agree. It is the help and talks with other special needs parents that have provided me some of the best support. Even if it is just a “you got this!” One of the reasons I love WP! 🙂
I’m so happy to hear that. All of us need something to look forward to, someone to look upto, and someone to nurture. It all averages out in the end.
The countdown has begun! 🎉
Yes! Thank you! 🙂
Welcome!
You were very lucky that your husband met that guy and that you both became friends of his and his wife. Having a husband like you have is wonderful too. With that kind of support, things can only get better, Robyn.
I think you are right! Thanks Kim 🙂
Im at the point of searching for support right now. i have 2 sons with autism. and its been about a year since i literally feel like a whole new chaos came into our front door. im finding it hard just with the sympathy looks from people who dont know what its like although they genuinely want to help. sometimes just a chat with someone who gets it would be a day changer. i started my own posts purley to just offload my own thoughts. i really hope it does get better x
I am glad we can connect! I have found a lot of positive support here on WP – from other autism parents and from readers in general. I would recommend reaching or reading posts from King Ben’s Grandma – one of my favorite people to connect with as an autism parent. She can be found here: https://kingbensgrandma.wordpress.com/ So happy to connect with you!
aw thankyou so much! king bens grandma actually commented on one of my posts yesterday and i habe enjoyed reading her posts. its so refreshing to see and talk to people who know what your going through xx
That is awesome! I am so happy! She gets it and is soo helpful. She is in your corner! 🙂
thankyou. im so happy i came here x
Me too! 🙂