I heard little feet and giggling coming up the basement stairs with the sound of paper brushing against the wall.
βDad?βΒ Declan called, looking at his device waiting for a response with a crumpled pile of papers in his hand.
βHeβs not here,β I answered.
βBobby?β Declan asked walking toward the front window to peek out.
βHeβs with Dad.Β Whatβs up?β
Declan giggled and skipped towards me.
βI want him to do the βguess it rightβ challenge!βΒ Declan squealed and placed the papers on the table in front of me.Β βPick one!β he exclaimed.
I looked at the paper he had put down.Β There were four larges circles haphazardly drawn and colored in.
βJust pick one?β I asked, and after he nodded, I pointed to the bright green circle.Β βI pick this one.β
βWRONG!β Declan yelled and fell into an imaginary pool of laughter.
I looked at the paper and flipped it over.Β Sure enough, under the other circles there were all check marks.Β Under the bright green circle there was an βX.β
βWell, you got me!Β Are these circles on all those papers in the stack?β
Declan nodded and returned to look out the window, βI canβt wait for Daddy to come home so I can play this challenge with him!β
Declan hopped up and down, squealing again.Β With the papers gripped in one hand and his device in the other, Declan hopped onto the couch and began to jump, stimming and listening to his new favorite song about the U.S. Presidents.
Eventually the front door opened, and the rest of the family appeared.Β Declan jumped from the sofa and yelled, βDad!β
βHey Declan!Β How are you?β
βI WANT TO DO THE βGUESS IT RIGHTβ CHALLENGE WITH YOU!β
βOkay, just give me five minutes I need to talk with Mom first.β
βI WANT TO DO THE βGUESS IT RIGHTβ CHALLENGE WITH YOU!β
Declan made a grunting sound and hopped around.
My husband put up the βwaitβ sign and began to talk to me.Β After about thirty seconds of conversation Declan burst:
βI WANT TO DO THE βGUESS IT RIGHTβ CHALLENGE WITH YOU!β
βYou need to wait a few more minutes.Β Go listen to your song again, okay?β
Declan started to get agitated and grunted, swaying from foot to foot.
My husband hesitated to start again.Β After a few seconds he continued.
βI WANT TO DO THE βGUESS IT RIGHTβ CHALLENGE WITH YOU!β Declan cried throwing his device into the air.
My husband sighed and looked down.Β Diagnosed with ADD my husband has a hard time keeping a thought in mind long enough to express it, even on his medications.
βBobby?β I called, βCan you do a challenge with Declan for a few minutes while I talk with Dad?β
βSure!β
A relieved Declan laughed his way through the challenge he was so desperate to play.Β Β And I got the rest of the information my husband was trying so desperately to remember.
One of the harder things for Declan is patience.
Patience is hard concept for any child to learn.Β For Declan it has been near impossible.
Time is abstract and waiting is not fun.
Heaven forbid an expected Amazon prime package does not arrive in the two allotted days.Β Or even worse, we order from Ebay β the mailbox is checked hourly with hours of frustrated tears.
Waiting for requested food, waiting in line, waiting rooms (the name brings terror alone!) β all require patience.
βJust give me five minutesβ or βthe package wonβt be here until Fridayβ are words that are lost on Declanβs brain.
So, we go to the workarounds.Β The distractors.Β Sensory toys.Β Help from Bobby.Β Anything to help fill the empty time.
And pull from our patience to help Declan through his frustration with waiting.
I know Isobelle doesn’t understand time at all.
Time is hard. Cate has a difficulties with figuring out money as well.
Yes, she can’t make change.
As always .. beautifully written prose about real life. It makes for compelling reading x
Thank you so much!
apologies if this comes in twice. Sounds like you are all doing a great job. Son struggles with the concept of time so patience just doesnβt naturally to him. As heβs got older he has developed a bit of patience. He still jumps from foot to foot or walking round the house then coming back quickly, putting his hand up and waiting to be allowed to star.
Thank you so much! I know this is a problem we are having, but not sure we are getting anywhere with it – and I always try to bring the happy out at the end – not sure I got there π Yes, I know that dance! Declan still has that frustration with it. I think in a few years Declan will be hopefully doing the same π
This was always a challenge for us. Eventually my son understood timers. Out in public it was difficult but at home at least we could eventually get him to wait although he would carry the timer around everywhere. π
That is a good idea! We tried using a timer with Declan in the past for time outs. He got so frustrated with it he hid it. But he is older and I bet that may help. Thanks for the tip! π
Iβve got to admit that I can be similar to Declan, patience is not one of my virtues π
Yes, patience is tough. I just hate seeing him get soo upset and unable to calm down. I just wish I could help him with it more.
It was a great idea asking Bobby, Iβm sure you will come up with an idea π‘
I just started following your blog.
I work in special education and I think all the parents of children with special needs are heros!
Thank you!
I know exactly what you are dealing with, my Erik has came a VERY long way with being patient and I’m actually able to take him in public now without major meltdowns or tantrums. Years of consistency, patience, prayer and training has paid off!
Oh, thank you! So good to know. We’ll keep working at it!
To most people, patience is indistinguishable from magic.
Patience can be tough!
You and your husband make an absolutely awesome team: Iβm not sure if you know how rare it is for parents to work together and have a united front in the face of challenges – any challenges – regarding their kids. My now grown children did not have special needs but I have friends who do. Your blog is giving me such insight and understanding. πππ
Thank you so much! I really like your blog too. Loved your grandmother’s story yesterday – and her roses! That was special. Thanks again!
Thanks so much for letting me know you liked my story, too. That means a great deal… πππ
I’m with you on this, Robyn. Waiting is hard, especially for kids on the spectrum. We have that problem too. It’s a hard concept for any kid to get their heads round, and lets face it, none of us likes waiting. You do handle it so well though. Great post highlighting a common issue. Thanks for sharing. π
Thanks Alli! π
Thank heavens for distractions. You’re right about it being like pulling from a toolbox of options.
Thank you!